Albuquerque Homeschool Forum / Introductions / homeschooling our disabled children
Posted by: sacararose (Guest), July 27, 2004, 11:45am
I've had quite a few emails asking what our children's disablities are so I wrote a basic list down to help explain it. Our daughter is 6 and she has complex partial seizures, as well as the starting of schizophrenia although at this point it is being called "psychosis NOS". She is sweet but is differnet that other kids and we pulled her out of school because of the terrible things other children were doing to her. I've wanted to homeschool for years so I was happy to school her in the safety of our home. The other problem was that instead of the 3 arteries that are in a normal umbilicord my daughter only had one which didn't allow for enough oxygen to flow through to her brain. Sensory integration issues and OCD. This gives her problems that only time will allow us to deal with.
Our son is 4 and was born at 31 weeks with the cord wrapped 3 times around his neck. He was in distress so I was induced to have him. Severe Rh disease caused my son to need a full blood transfusion to save his life, unforuntately it also caused many problems for him. Hydrops fetalis (fetal hydrops) is rare I'm told but that made no differnce in the damage that was done to him. The excessive amounts of bilirubin in his blood lead to brain damage (kernicterus), resulting in various serious health problems, including hearing loss, mental retardation, and behavior problems. Luckly the hearing loss has been improved with tubes being placed every 18 months so that he is not deaf. Mental retardation seems to be called "developmental disabilities" more than anything else. His behavior problems can be very violent at times. He is very tall and large for his age which gives him the extra strength to bulldoze someone down. We have been taught to restrain him as needed which can be daily at times. Although watching it can be distressing to some people, I've learned that not restraining can be worse. Hope this helps some. We love our children very much, and at least our life is never boring :) We also have our children in speech and OT therepies as well as seeing more doctors than you can shake a stick it.